Annie Janvier is part of a group of collaborators who are trying to get multiple opinions about meaningful outcomes in preterm babies. It is part of a project being run by the Canadian Follow-up Network CNFUN, which is called Parent-EPIQ.
If you want to participate you can follow this link
https://rc.bcchr.ca/redcap/surveys/?s=H8449HPLEJ
Feel free to answer from wherever you are in the world, I just completed and it took less than 5 minutes.