Tag Archives: families

Neonatal Sepsis after Chorioamnionitis, what to do about healthy appearing newborns

In 2007, when I was chair of the CPS Fetus and Newborn Committee, we published a guideline regarding the approach to term and late preterm infants with perinatal risk factors for sepsis. Obviously any infant with clinical signs consistent with … Continue reading

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Antenatal Consultations before very preterm birth; what do parents want?

Gaucher N, et al. Personalized Antenatal Consultations for Preterm Labor: Responding to Mothers’ Expectations. The Journal of pediatrics. 2016. Call me biased, but I think is a game-changer. (One of the authors is my wife and colleague, another is a … Continue reading

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Making Good Decisions; part 2

Green J, et al. Quality versus quantity: The complexities of quality of life determinations for neonatal nurses. Nurs Ethics. 2016. This study used a mixture of quantitative (survey of over 400 nurses) and qualitative (interviews with 24 nurses) methods. The … Continue reading

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Death of a twin

Twins are much more likely to end up in the care of the NICU than singletons, and much more likely to be extremely preterm, and as a result the phenomenon of having one of twins die, while the other remains … Continue reading

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Are we family centered? Families don’t think so!

Finlayson K, et al. Mothers’ perceptions of family centred care in neonatal intensive care units. Sex Reprod Healthc. 2014;5(3):119-24. This qualitative study interviewed mothers who had babies in one of three NICUs in the UK which claim to practice family-centered care. As … Continue reading

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Before 24

The latest New England Journal of Medicine has a fascinating article the first author of which was a medical student who was working with Ed Bell in Iowa (I say was a medical student as I believe he has now … Continue reading

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A Parent writes in the BMJ

Published today, a brief article by a parent of a child with trisomy 18. Please read it, it won’t take more than a few minutes, but it could make a difference to how you interact with the next parent who … Continue reading

Posted in Advocating for impaired children, Neonatal Research | Tagged , | 4 Comments