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Tag Archives: Ethics
Longer-term outcomes of very preterm babies, what should we measure, when and why?
Two recent articles have discussed the issue of what outcomes we should measure to analyze neurological and developmental progress in the preterm baby. Both are thoughtful critical pieces that say many things that we need to think about as we … Continue reading
Antenatal Consultations before very preterm birth; what do parents want?
Gaucher N, et al. Personalized Antenatal Consultations for Preterm Labor: Responding to Mothers’ Expectations. The Journal of pediatrics. 2016. Call me biased, but I think is a game-changer. (One of the authors is my wife and colleague, another is a … Continue reading
Long term survival in trisomy 13 and 18
After my previous post on this topic, John Lantos wrote a comment pointing out this recent publication, Nelson KE, et al. Survival and Surgical Interventions for Children With Trisomy 13 and 18. JAMA. 2016;316(4):420-8. It is a large regional cohort, identified from … Continue reading
Posted in Advocating for impaired children, Neonatal Research
Tagged Ethics, mortality, trisomy
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Two New Publications
After a few weeks break (for a number of reasons), I’m ready to start blogging again! I’m sure you have all missed the succinct and perceptive critiques of the recent neonatal literature, but today I will start with 2 publications … Continue reading
Posted in Neonatal Research
Tagged Ethics, Health Care Organization, mortality, Research Design
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Moral Distress among nurses (and others).
This publication appeared on-line a couple of months ago, and still isn’t in print. Prentice T, et al. Moral distress within neonatal and paediatric intensive care units: a systematic review. Arch Dis Child. 2016. It is a systematic review from Melbourne, … Continue reading
Making Good Decisions: part 3. Living with the aftermath
When there are decisions made about withholding or withdrawing life-sustaining interventions for a baby. There are 2 possible long term outcomes, either the baby will be there a few weeks hence, or not. What do we know about how parents … Continue reading
Making Good Decisions; part 2
Green J, et al. Quality versus quantity: The complexities of quality of life determinations for neonatal nurses. Nurs Ethics. 2016. This study used a mixture of quantitative (survey of over 400 nurses) and qualitative (interviews with 24 nurses) methods. The … Continue reading
