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Tag Archives: Ethics
Antenatal Consultations before very preterm birth; what do parents want?
Gaucher N, et al. Personalized Antenatal Consultations for Preterm Labor: Responding to Mothers’ Expectations. The Journal of pediatrics. 2016. Call me biased, but I think is a game-changer. (One of the authors is my wife and colleague, another is a … Continue reading
Long term survival in trisomy 13 and 18
After my previous post on this topic, John Lantos wrote a comment pointing out this recent publication, Nelson KE, et al. Survival and Surgical Interventions for Children With Trisomy 13 and 18. JAMA. 2016;316(4):420-8. It is a large regional cohort, identified from … Continue reading
Posted in Advocating for impaired children, Neonatal Research
Tagged Ethics, mortality, trisomy
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Two New Publications
After a few weeks break (for a number of reasons), I’m ready to start blogging again! I’m sure you have all missed the succinct and perceptive critiques of the recent neonatal literature, but today I will start with 2 publications … Continue reading
Posted in Neonatal Research
Tagged Ethics, Health Care Organization, mortality, Research Design
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Moral Distress among nurses (and others).
This publication appeared on-line a couple of months ago, and still isn’t in print. Prentice T, et al. Moral distress within neonatal and paediatric intensive care units: a systematic review. Arch Dis Child. 2016. It is a systematic review from Melbourne, … Continue reading
Making Good Decisions: part 3. Living with the aftermath
When there are decisions made about withholding or withdrawing life-sustaining interventions for a baby. There are 2 possible long term outcomes, either the baby will be there a few weeks hence, or not. What do we know about how parents … Continue reading
Making Good Decisions; part 2
Green J, et al. Quality versus quantity: The complexities of quality of life determinations for neonatal nurses. Nurs Ethics. 2016. This study used a mixture of quantitative (survey of over 400 nurses) and qualitative (interviews with 24 nurses) methods. The … Continue reading
Making Good Decisions; part 1
White DB, et al. Prevalence of and Factors Related to Discordance About Prognosis Between Physicians and Surrogate Decision Makers of Critically Ill Patients. JAMA. 2016;315(19):2086. This is a really cool study among families who had a family member in the … Continue reading
