Tag Archives: Ethics

Ethical conflicts and moral distress in the NICU, are they all bad?

The term “moral distress” was coined by nursing researchers who were, generally, referring to situations in which nurses were constrained to act in opposition to their ethical beliefs, usually by having to follow medical orders that they disagreed with. More … Continue reading

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Guidelines to help parents who have lost one of twins

Many readers of this blog will recognize the name of Nick Embleton as someone who has done a great deal of nutrition research, and research into the intestinal microbiome of very preterm infants. He also has a major interest in … Continue reading

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Longer-term outcomes of very preterm babies, what should we measure, when and why?

Two recent articles have discussed the issue of what outcomes we should measure to analyze neurological and developmental progress in the preterm baby. Both are thoughtful critical pieces that say many things that we need to think about as we … Continue reading

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Antenatal Consultations before very preterm birth; what do parents want?

Gaucher N, et al. Personalized Antenatal Consultations for Preterm Labor: Responding to Mothers’ Expectations. The Journal of pediatrics. 2016. Call me biased, but I think is a game-changer. (One of the authors is my wife and colleague, another is a … Continue reading

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Long term survival in trisomy 13 and 18

After my previous post on this topic, John Lantos wrote a comment pointing out this recent publication, Nelson KE, et al. Survival and Surgical Interventions for Children With Trisomy 13 and 18. JAMA. 2016;316(4):420-8. It is a large regional cohort, identified from … Continue reading

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Two New Publications

After a few weeks break (for a number of reasons), I’m ready to start blogging again! I’m sure you have all missed the succinct and perceptive critiques of the recent neonatal literature, but today I will start with 2 publications … Continue reading

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Moral Distress among nurses (and others).

This publication appeared on-line a couple of months ago, and still isn’t in print. Prentice T, et al. Moral distress within neonatal and paediatric intensive care units: a systematic review. Arch Dis Child. 2016. It is a systematic review from Melbourne, … Continue reading

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Making Good Decisions: part 3. Living with the aftermath

When there are decisions made about withholding or withdrawing life-sustaining interventions for a baby. There are 2 possible long term outcomes, either the baby will be there a few weeks hence, or not. What do we know about how parents … Continue reading

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Making Good Decisions; part 2

Green J, et al. Quality versus quantity: The complexities of quality of life determinations for neonatal nurses. Nurs Ethics. 2016. This study used a mixture of quantitative (survey of over 400 nurses) and qualitative (interviews with 24 nurses) methods. The … Continue reading

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Making Good Decisions; part 1

White DB, et al. Prevalence of and Factors Related to Discordance About Prognosis Between Physicians and Surrogate Decision Makers of Critically Ill Patients. JAMA. 2016;315(19):2086. This is a really cool study among families who had a family member in the … Continue reading

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