Tag Archives: families

A Parent writes in the BMJ

Posted on 6 May 2015 by Keith Barrington

Published today, a brief article by a parent of a child with trisomy 18. Please read it, it won’t take more than a few minutes, but it could make a difference to how you interact with the next parent who … Continue reading →

Posted in Advocating for impaired children, Neonatal Research | Tagged , | 4 Comments

High Flow Nasal Cannulae: poor man’s CPAP?

Posted on 1 May 2014 by Keith Barrington

The title is how I sometimes refer to HFNC, but one could ask whether that is all there is to high flow, is it just another way to deliver CPAP, but with no control, or knowledge, of the pressure delivered? … Continue reading →

Posted in Neonatal Research | Tagged , , , , | 2 Comments

Executive Function?

Posted on 29 April 2014 by Keith Barrington

Raju TNK, Mercer BM, Burchfield DJ, Joseph GF. Periviable birth: executive summary of a Joint Workshop by the Eunice Kennedy Shriver National Institute of Child Health and Human Development, Society for Maternal-Fetal Medicine, American Academy of Pediatrics, and American College … Continue reading →

Posted in Neonatal Research | Tagged , , , | 1 Comment

Single baby rooms?

Posted on 8 April 2014 by Keith Barrington

Terrie Inder and her colleagues have put the cat among the pigeons (as we say in England, I guess we are not keen on pigeons). Her (non-randomized) study suggests that babies who were treated in single rooms had poorer language skills … Continue reading →

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‘Do everything’

Posted on 3 September 2012 by Keith Barrington

A wonderful article just published by Chris Feudtner, who dissects a phrase that we hear all too often. ‘I want you to do everything’. He examines what families mean when they say this, and how we might respond as medical … Continue reading →

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“Our children are not a diagnosis”: the family experience of trisomy 13 and 18

Posted on 23 July 2012 by Keith Barrington

Annie Janvier, Barb Farlow and Ben Wilfond have just published a rather disturbing study. At least I feel a bit disturbed. (Janvier A, Farlow B, Wilfond BS: The experience of families with children with trisomy 13 and 18 in social … Continue reading →

Posted in Advocating for impaired children | Tagged , , | 104 Comments