A story published in the PNEJM from a mother of a patient with epilepsy that was very difficult to treat who is also a physician, as is the father. Their boy eventually had seizure surgery, more than once.
She ends the piece with this quote:
“Is it easier or harder to have a sick child when both parents are doctors?” But this is the wrong question. There is no hard, no easy. Only fear and love, panic and relief, shaking and not shaking.
(the ‘shaking’ refers to her son’s seizures).
Annie and I have been asked the same question many times, about our experiences as parents in the NICU. I would echo the sentiment of this author, it was no harder, no easier, it is hard for everyone who has a critically ill child. There was fear and love, panic and relief, and eventually, for us, resolution and acceptance.