Tag Archives: Ethics

More than a diagnosis

Posted on 6 January 2014 by Keith Barrington

The latest from Annie Janvier and team, a publication describing the experiences of families in their internet support group questionnaire study. this particular publication is interested in what happened to families that had a prenatal diagnosis, of trisomy 13 or trisomy … Continue reading →

Posted in Advocating for impaired children | Tagged , | 18 Comments

Drug shortages

Posted on 18 December 2013 by Keith Barrington

The recent study by Kluckow and his colleagues points out another serious issue in neonatology: drug shortages. In recent times we have had poor or no supplies of dramatically important drugs, including for example indomethacin, phenobarbitone and more recently caffeine. We also … Continue reading →

Posted in Neonatal Research | Tagged , | 3 Comments

Long term outcomes after Very Extremely Preterm Delivery

Posted on 15 December 2013 by Keith Barrington

Another blog post suggested by a reader, this time from Jim Goodmar from San Diego. This study of neurological and developmental outcomes of babies born before 25 weeks is remarkable in a number of ways. (Herber-Jonat S, Streiftau S, Knauss … Continue reading →

Posted in Neonatal Research, The CPS antenatal counselling statement | Tagged , , , | 4 Comments

Parents advocate for equality for preterm infants

Posted on 27 November 2013 by Keith Barrington

The president of the Canadian Premature Babies Foundation, Katharina Staub, has just had a letter published in the CMAJ. The letter was in response to the article by Dan and Beau Batton, and emphasizes many of the points that they … Continue reading →

Posted in Neonatal Research | Tagged , | 5 Comments

Personalized Medicine in the NICU

Posted on 20 November 2013 by Keith Barrington

An article I wrote, with that title, as an open peer commentary in the American Journal of Bioethics has just appeared on-line. The first 50 people to click on the link at the bottom of this post below can get a free full … Continue reading →

Posted in Neonatal Research | Tagged , , | 1 Comment

Perpetuating Prejudice against Preterms; where should we go from here?

Posted on 19 November 2013 by Keith Barrington

Do we really need a position statement? There is no position statement of the CPS about counselling parents when their child presents with meningococcal disease. There is no position statement for the child with serious brain trauma. A position statement … Continue reading →

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Perpetuating Prejudice against Preterms: 6 Conflating Death and Disability

Posted on 11 November 2013 by Keith Barrington

Towards the end of last year the Canadian Pediatric Society published a new ‘position statement’. These are official proclamations of the society, supposedly based on the best available evidence to guide practice, and which become de facto standards of care. This particular … Continue reading →

Posted in The CPS antenatal counselling statement | Tagged , | Leave a comment

Perpetuating Prejudice against Preterms: 5. Impairment, what does it mean?

Posted on 7 November 2013 by Keith Barrington

Towards the end of last year the Canadian Pediatric Society published a new ‘position statement’. These are official proclamations of the society, supposedly based on the best available evidence to guide practice, and which become de facto standards of care. … Continue reading →

Posted in Advocating for impaired children, The CPS antenatal counselling statement | Tagged , | 1 Comment

Perpetuating Prejudice against Preterms: 4. Selectively quoting the literature

Posted on 7 November 2013 by Keith Barrington

Towards the end of last year the Canadian Pediatric Society published a new ‘position statement’. These are official proclamations of the society, supposedly based on the best available evidence to guide practice, and which become de facto standards of care. … Continue reading →

Posted in The CPS antenatal counselling statement | Tagged , , | 1 Comment

Perpetuating Prejudice against Preterms: 3. Misquoting the evidence.

Posted on 7 November 2013 by Keith Barrington

Towards the end of last year the Canadian Pediatric Society published a new ‘position statement’. These are official proclamations of the society, supposedly based on the best available evidence to guide practice, and which become de facto standards of care. … Continue reading →

Posted in The CPS antenatal counselling statement | Tagged , , | Leave a comment