The president of the Canadian Premature Babies Foundation, Katharina Staub, has just had a letter published in the CMAJ. The letter was in response to the article by Dan and Beau Batton, and emphasizes many of the points that they brought up. It seems to be free access http://www.cmaj.ca/content/early/2013/10/28/cmaj.130268.citation/reply#cmaj_el_716559, and I would urge you to read it: the voices of the parents have often been missing form this debate, lets hope that is starting to change.
One point that Katharina makes very strongly is the way these position statements, and their recommendations for counseling, always include a long list of complications, potential impairments, and everything that limits the lives of preterm babies, but no balancing list of ‘what preterm babies and children can do, how they live happy lives and what they bring to their families and communities.’
Talking to parents and only focusing on the negative does not give a balanced view of the situation, and surely we must be balanced.