A new book about neonatal clinical ethics has just been released. Eduard Verhagen and Annie Janvier are the editors.
Here is the blurb:
Ethical Dilemmas for Critically Ill Babies
Editors: Verhagen, Eduard, Janvier, Annie.
Series: International Library of Ethics, Law, and the New Medicine, Vol. 65
Addresses important ethical questions about human life and medical interventions
Only volume which covers the important issues related to ethical, legal and medical aspects of neonatology intensive care
Contains contributions from the leading experts in the field of neonatology, bioethics and health law. Most neonates who now survive intensive care would have died 50 years ago, and “nature” would have decided the outcomes, making ethical discussions about initiating or withholding resuscitation irrelevant. Medical developments in neonatology have changed the way we respond to diseases of neonates, to their illness, and to their parents. Not only as physicians, but also as a society. Decisions on when to start, withhold, or withdraw life-saving interventions in critically ill neonates are among the most difficult decisions in pediatric practice. These decisions are fraught with ethical dilemmas, for example deciding whether withholding intensive care –leading to death- is superior to uncertain survival with a risk of disability and the additional burden of intensive care. This book covers important ethical questions that arise in neonatal intensive care units. Questions such as, whether to intervene medically and whether we are good at predicting the outcome of fragile neonates; whether a medical intervention should be withheld or withdrawn, and who should be primarily responsible for these decisions and how?
The book is derived from presentations that were given at a conference near Geneva that was sponsored by the Brocher Foundation. There are 2 chapters written by yours truly:
Predicting Outcomes in the Very Preterm Infant.
Keith J Barrington (page 51).
A perceptive and disturbing evaluation of why we do so many imperfect tests in the NICU to try and predict the future life of newborn babies.
(that’s not the publisher’s blurb, I wrote that)
Neonates are Devalued Compared to Older Patients
Annie Janvier, Carlo Bellieni, and Keith Barrington (page 25).
A perceptive and disturbing evaluation of the way newborn infants are treated differently, and negatively compared to older children.
(Guess who wrote that).
You can buy it here, as an ebook it’s a steal at $99.