Tag Archives: Ethics

How to deal with mortality in Perinatal Research: Part 2

Posted on 6 May 2015 by Keith Barrington

When we consider prospective research, there are a couple of other issues to add into the conundrum. One is that, as many neonatal deaths follow a decision to limit the intensity of care, any intervention being studied risks affecting decision-making, and … Continue reading →

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How to deal with mortality in perinatal research: Part 1.

Posted on 6 May 2015 by Keith Barrington

At the PAS-meeting that just finished, we had a very well received topic symposium which was all to do with how death and dying has changed in neonatology over the last decade. My part of the symposium was to discuss … Continue reading →

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A Parent writes in the BMJ

Posted on 6 May 2015 by Keith Barrington

Published today, a brief article by a parent of a child with trisomy 18. Please read it, it won’t take more than a few minutes, but it could make a difference to how you interact with the next parent who … Continue reading →

Posted in Advocating for impaired children, Neonatal Research | Tagged , | 4 Comments

Murky Guidance

Posted on 5 November 2014 by Keith Barrington

After the OHRP meetings and their evaluation of the SUPPORT controversy, the OHRP have now released what they call “Draft Guidance on Disclosing Reasonably Foreseeable Risks in Research Evaluating Standards of Care” The conclusion of the draft guidance starts with … Continue reading →

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The voice of Parents, now in print.

Posted on 8 October 2014 by Keith Barrington

Katharina Staub and other parents have written and published an article in Acta Paediatrica. ‘ Our child is not just a gestational age‘. In the NICU babies are often referred to by how many weeks they spent in the uterus, … Continue reading →

Posted in Neonatal Research, The CPS antenatal counselling statement | Tagged | 1 Comment

Executive Function?

Posted on 29 April 2014 by Keith Barrington

Raju TNK, Mercer BM, Burchfield DJ, Joseph GF. Periviable birth: executive summary of a Joint Workshop by the Eunice Kennedy Shriver National Institute of Child Health and Human Development, Society for Maternal-Fetal Medicine, American Academy of Pediatrics, and American College … Continue reading →

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Public citizen are becoming a public danger

Posted on 13 March 2014 by Keith Barrington

Public citizen are at it again, they have written another letter to the director of the DHHSS to try and follow up on their previous nonsense. I didn’t write about this when I first heard about it, as 1. it … Continue reading →

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Leave my renal nerves alone, please.

Posted on 10 March 2014 by Keith Barrington

Not having looked after an adult for many years (although I did do a year of postgraduate training in adult internal medicine before switching to paediatrics; I thought I should practice on the old ones before subjecting children to my … Continue reading →

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Communicating with parents, and decision making for the extremely immature infant

Posted on 28 January 2014 by Keith Barrington

The other two articles that I mentioned in the last post, from the new issue of Seminars in Perinatology, were written to discuss a framework for decision making for the extremely immature infant. (Dupont-Thibodeau A, Barrington KJ, Farlow B, Janvier … Continue reading →

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Still Perpetuating Prejudice Against Preterms

Posted on 24 January 2014 by Keith Barrington

Our commentary has just been published in Paediatrics and Child Health, the CPS journal together with a response from the Society. (they seem to be open access, but I am not certain). I am disappointed by the response, but not … Continue reading →

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