The voice of Parents, now in print.

Katharina Staub and other parents have written and published an article in Acta Paediatrica. ‘ Our child is not just a gestational age‘.

In the NICU babies are often referred to by how many weeks they spent in the uterus, so X is a 24 weeker, Y is a 23 weeker, etc. Worse, decisions are made about whether or not to institute or continue life sustaining interventions based on estimates of completed weeks of gestational age, when other factors are just as important, and babies may not even be offered active intervention as a result of a sometimes very limited analysis; which gives an overwhelming influence to the estimated (or often, guesstimated) gestational age.

I have already discussed this article in a post, as it was already available on-line, but as it has now appeared in the print edition I thought I would give another mention to this article, one of too few which have really given a voice to parents.

About keithbarrington

I am a neonatologist and clinical researcher at Sainte Justine University Health Center in Montréal
This entry was posted in Neonatal Research, The CPS antenatal counselling statement and tagged . Bookmark the permalink.

One Response to The voice of Parents, now in print.

  1. katharinastaub says:

    Thank you for pointing out the article. Language is important and parents often have a name picked for their child, the names do not begin with 23 or 24 and don’t end in -weeker. I’m looking forward to getting feedback about the publication
    .

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