Can we share decisions?

I found this article quite insightful. (Joseph-Williams N, Edwards A, Elwyn G: Power imbalance prevents shared decision making. Bmj 2014, 348).

Shared decision making is a buzz-word (buzz-phrase I guess) to describe how to pursue good decision making with patients (or in our case parents). The general idea being that the physicians have the knowledge, the training and the insight to know what options are appropriate, and the risks and benefits of each option. The patient has their values, their opinions, and their preferences, and by putting these aspects together we can come to a decision which is in the best interests of the patient and consistent with their values.

This new article is an analysis piece based on the authors systematic review of the literature of barriers to shared decision-making, as a result of which the authors conclude:

  • Many patients currently feel they can’t participate in shared decision making

  • Power imbalances in the clinical encounter are a key barrier even if patients have the required knowledge

  • Patients need to know that their input is valued and won’t damage their care

  • The attitudes of both patients and clinicians need to change to enable shared decision making

I think the power imbalance in neonatology maybe even more important, many parents do not feel free to express their wishes, their doubts, their hopes, because of the different status of the persons involved, but also because parents are often completely lost at the start of the hospitalisation. It is an experience so far outside of what they have lived before that few have any relevant knowledge when we first meet them and the ‘power imbalance’ is really marked. What to do about this? How do we empower parents, and help them recognize the importance of their part in the shared decisions?

About keithbarrington

I am a neonatologist and clinical researcher at Sainte Justine University Health Center in Montréal
This entry was posted in Neonatal Research. Bookmark the permalink.

2 Responses to Can we share decisions?

  1. Thierry Daboval says:

    Hi Keith, your questions are more than pertinent.

    I just complete a research exactly on that and you can find the thesis at the following address: http://depositum.uqat.ca/574/1/Daboval%2C_Thierry.pdf. I would think you and other interested may find some answer in this document, however it is written in French. Best regards.

  2. Hi Keith,
    We are working hard on this in Ottawa. I’m hoping the presentation I’m giving at Trans-Canada Neonatal Rounds on Sept.17th will provide some useful information for other centres and get people thinking more about shared decision making, its intricacies and its difficulties. Thierry, Brigitte, and Sandy Dunn are key colleagues working with me on this area. Thanks for posting this article.
    Greg

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s