Tag Archives: Ethics

Who benefits from whole genome sequencing in the NICU? Who suffers?

Annie and I recently published a letter to the editor of Pediatrics and Child Health about the ethical implications of using Complete Genome Hybridization (CGH) as the default test for possibly genetically determined disorders in pediatrics. CGH is a very … Continue reading

Posted in Neonatal Research | Tagged , | 1 Comment

A life worth living: myelomeningocele.

Do handicapped persons’ lives have value? Even asking that question is offensive, at least to me, and I just asked it! It seems to me that much of the focus of programs of antenatal diagnosis is based on the premise … Continue reading

Posted in Advocating for impaired children | Tagged , | 9 Comments

‘Do everything’

A wonderful article just published by Chris Feudtner, who dissects a phrase that we hear all too often. ‘I want you to do everything’. He examines what families mean when they say this, and how we might respond as medical … Continue reading

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Weekly Updates #3

A few new publications (I know it’s not quite weekly, but I am on vacation!): Nguyen TP, Amon E, Al-Hosni M, Gavard JA, Gross G, Myles TD: “Early” versus “late” 23-week infant outcomes. Am J Obstet Gynecol 2012(0). Not too … Continue reading

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Predicting outcomes: Adults vs Babies

An interesting article in Archives of Internal Medicine (Chan PS, Spertus JA, Krumholz HM, Berg RA, Li Y, Sasson C, Nallamothu BK, Investigators. GWTG-RR: A validated prediction tool for initial survivors of in-hospital cardiac arrest. Arch Intern Med 2012, 172(12):1-7. http://archinte.jamanetwork.com/article.aspx?articleid=1162169); … Continue reading

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