As usual for a TED talk this is 18 minutes long, and, in that brief time, Annie recounts her trajectory: learning from families of kids with trisomy 13 and trisomy 18; our own experience with counselling for threatened extreme preterm birth, from both sides of the conversation; and the Parents Voices Project. The only thing I don’t like about this video is the still that was chosen by their algorithm to appear with the title, which has a weird expression on Annie’s face.
The description below the video of Annie’s TEDx talk, which she presented in Fort Lauderdale in September this year, at the Delphi conference of neonatal innovation, notes:
In this heartfelt TEDx talk, Dr. Annie Janvier, Professor of Pediatrics and Clinical Ethics at the University of Montreal, shares profound insights from her work as a neonatologist and ethicist. Drawing on her personal experiences as a mother to children with healthcare needs, including one born at just 24 weeks, Dr. Janvier explores the lessons that premature and critically ill babies can teach us about resilience, life, and the complexities of healthcare. Her unique perspective sheds light on the challenges families face and the ethical questions that arise in critical care, encouraging us to view life and health through a compassionate lens. Dr Annie Janvier is a Professor of pediatrics and clinical ethics at University of Montreal. She is neonatologist and clinical ethicist at the Sainte-Justine University health center. She holds a PhD in Bioethics and co-directs the Masters and PhD programs in clinical ethics at University of Montreal. She works first hand with patients and families confronted with difficult decisions such as end-of-life issues, and decision-making in the face of uncertainty. She is also the parent of three children who had or have healthcare needs, one of which was born at 24 weeks
The most recent publications from the Parents’ Voices Project include
Pearce R, et al. Partnering With Parents to Change Measurement and Reporting of Preterm Birth Outcomes. Pediatrics. 2024;154(5).
Church PT, et al. NICU Language, Everyday Ethics, and Giving Better News: Optimizing Discussions about Disability with Families. Children (Basel). 2024;11(2).
Synnes A, et al. Redefining Neurodevelopmental Impairment: Perspectives of Very Preterm Birth Stakeholders. Children (Basel). 2023;10(5).
Thivierge E, et al. Pulmonary important outcomes after extremely preterm birth: parental perspectives. Acta Paediatr. 2023;112(5):970-6.
Janvier A, et al. Fragility and resilience: parental and family perspectives on the impacts of extreme prematurity. Arch Dis Child Fetal Neonatal Ed. 2023;108(6):575-80.
Neonatal Research 
Thanks for the blog post ❤️
The list of publications is not good though
here it is
•Jaworski M, Janvier A, Bourque CJ, Mai-Vo TA, Pearce R, Synnes AR, Luu TM. Parental perspective on important health outcomes of extremely preterm infants. Arch Dis Child Fetal Neonatal 2022 Sep;107(5):495-500. doi: 10.1136/archdischild-2021-322711.
•Girard-Bock C, Flahault A, Bernard E, Bourque CJ, Fallaha C, Cloutier A, Janvier A, Nuyt AM, Luu TM. Health perception by young adults born very preterm. Acta Paediatr 2021 Nov;110(11):3021-3029.
•Thivierge E, Luu TM, Bourque CJ, Duquette LA, Pearce R, Jaworski M, Barrington KJ, Synnes A, Janvier A. Guilt and regret experienced by parents of children born extremely preterm. J Pediatr 2023 Jun:257:113268. doi: 10.1016/j.jpeds.2022.
•Milette AA, Richter LL, Bourque CJ, Janvier A, Pearce R Terrien Church P, Synnes A, Luu TH. Parental perspectives of outcomes following very preterm birth: Seeing the good, not just the bad. Acta Paediatr 2023 Mar;112(3):398-408
•Thivierge E, Luu TM, Bourque CJ, Barrington KJ, Pearce R, Jaworski M, Janvier A. Pulmonary important outcomes after extremely preterm birth: Parental perspectives. Acta Paediatr 2023 May;112(5):970-976.
•Janvier A, Bourque CJ, Pearce R, Thivierge E, Duquette LA, Jaworski J, Barrington KJ, Synnes A, Church P, Luu TM. Fragility and resilience: Parental and family perspectives on the impacts of extreme prematurity. Arch Dis Child Fetal Neonatal Ed. 2023 Nov;108(6):575-580.
•Synnes A, Chera A, Richter LL, Bone JN, Bourque CJ, Zhang-Jiang S, Pearce R, Janvier A, Luu TM. Redefining Neurodevelopmental impairment: Perspectives of very preterm birth stakeholders. Children (Basel) 2023 May 14;10(5):880.
•Synnes A, Lam MM, Ricci MF, Church P, Simard MN, Zwicker JG, Luu TM. How to measure patient and family important outcomes in extremely preterm infants: A scoping review. Acta Paediatr. 2024 Jun;113(6):1228-1235. doi: 10.1111/apa.17228. Epub 2024 Apr 5.
and 2 are in press
Annie