Category Archives: Advocating for impaired children

Abort all the bankers!

I just heard a great quote from Francesca Martinez on the BBC News Quiz. Francesca Martinez is a stand up comic with a disability (she is often a sit-down comic in fact as you can see here), she is very … Continue reading

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A life worth living: myelomeningocele.

Do handicapped persons’ lives have value? Even asking that question is offensive, at least to me, and I just asked it! It seems to me that much of the focus of programs of antenatal diagnosis is based on the premise … Continue reading

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‘Our children are not a diagnosis’ – what an amazing response!

This blog was initially intended mostly for health professionals (especially neonatologists and pediatricians in training) and others interested in academic neonatology, with the hope that some other people might find it interesting. The reaction to my post on Annie Janvier’s … Continue reading

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“Our children are not a diagnosis”: the family experience of trisomy 13 and 18

Annie Janvier, Barb Farlow and Ben Wilfond have just published a rather disturbing study. At least I feel a bit disturbed. (Janvier A, Farlow B, Wilfond BS: The experience of families with children with trisomy 13 and 18 in social … Continue reading

Posted in Advocating for impaired children | Tagged , , | 104 Comments