There is an upcoming workshop, sponsored by the AAP, and other groups, that is investigating what shared language should be used for the babies of less than 25 weeks gestation.

At present there are not as many responses as they would like from families, or from former preterm infants. I would encourage any readers of the blog, and especially those from the 2 groups I just mentioned, a few of whom, I know, follow this blog, to participate. The following is the generic notice that was circulated:

” We invite you to take a brief survey to provide feedback for an upcoming workshop about shared language for infants born at <25 weeks’ gestation. The workshop is sponsored by the American Academy of Pediatrics Section on Neonatal-Perinatal Medicine with representatives from the American College of Obstetricians and Gynecologists, Society for Maternal-Fetal Medicine, National Association of Neonatal Nurses, Association of Women’s Health, Obstetric and Neonatal Nurses, Vermont Oxford Network, Tiny Baby Collaborative, and NICU Parent Network. 

Survey participation is voluntary and confidential. The results may be used in workshop proceedings and future presentations or publications. For questions, you may e-mail matthew.a.rysavy@uth.tmc.edu. “

Survey link: https://uthtmc.az1.qualtrics.com/jfe/form/SV_dg9qrNqXGy5Orzw?list_source=ep