Tag Archives: families

Single baby rooms?

Terrie Inder and her colleagues have put the cat among the pigeons (as we say in England, I guess we are not keen on pigeons). Her (non-randomized) study suggests that babies who were treated in single rooms had poorer language skills … Continue reading

Posted in Neonatal Research | Tagged , | Leave a comment

‘Do everything’

A wonderful article just published by Chris Feudtner, who dissects a phrase that we hear all too often. ‘I want you to do everything’. He examines what families mean when they say this, and how we might respond as medical … Continue reading

Posted in Neonatal Research | Tagged , | Leave a comment

“Our children are not a diagnosis”: the family experience of trisomy 13 and 18

Annie Janvier, Barb Farlow and Ben Wilfond have just published a rather disturbing study. At least I feel a bit disturbed. (Janvier A, Farlow B, Wilfond BS: The experience of families with children with trisomy 13 and 18 in social … Continue reading

Posted in Advocating for impaired children | Tagged , , | 96 Comments