Tag Archives: families

High Flow Nasal Cannulae: poor man’s CPAP?

The title is how I sometimes refer to HFNC, but one could ask whether that is all there is to high flow, is it just another way to deliver CPAP, but with no control, or knowledge, of the pressure delivered? … Continue reading

Posted in Neonatal Research | Tagged , , , , | 2 Comments

Executive Function?

Raju TNK, Mercer BM, Burchfield DJ, Joseph GF. Periviable birth: executive summary of a Joint Workshop by the Eunice Kennedy Shriver National Institute of Child Health and Human Development, Society for Maternal-Fetal Medicine, American Academy of Pediatrics, and American College … Continue reading

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Single baby rooms?

Terrie Inder and her colleagues have put the cat among the pigeons (as we say in England, I guess we are not keen on pigeons). Her (non-randomized) study suggests that babies who were treated in single rooms had poorer language skills … Continue reading

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‘Do everything’

A wonderful article just published by Chris Feudtner, who dissects a phrase that we hear all too often. ‘I want you to do everything’. He examines what families mean when they say this, and how we might respond as medical … Continue reading

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“Our children are not a diagnosis”: the family experience of trisomy 13 and 18

Annie Janvier, Barb Farlow and Ben Wilfond have just published a rather disturbing study. At least I feel a bit disturbed. (Janvier A, Farlow B, Wilfond BS: The experience of families with children with trisomy 13 and 18 in social … Continue reading

Posted in Advocating for impaired children | Tagged , , | 96 Comments