Tag Archives: Ethics

Executive Function?

Raju TNK, Mercer BM, Burchfield DJ, Joseph GF. Periviable birth: executive summary of a Joint Workshop by the Eunice Kennedy Shriver National Institute of Child Health and Human Development, Society for Maternal-Fetal Medicine, American Academy of Pediatrics, and American College … Continue reading

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Public citizen are becoming a public danger

Public citizen are at it again, they have written another letter to the director of the DHHSS to try and follow up on their previous nonsense. I didn’t write about this when I first heard about it, as 1. it … Continue reading

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Leave my renal nerves alone, please.

Not having looked after an adult for many years (although I did do a year of postgraduate training in adult internal medicine before switching to paediatrics; I thought I should practice on the old ones before subjecting children to my … Continue reading

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Communicating with parents, and decision making for the extremely immature infant

The other two articles that I mentioned in the last post, from the new issue of Seminars in Perinatology, were written to discuss a framework for decision making for the extremely immature infant. (Dupont-Thibodeau A, Barrington KJ, Farlow B, Janvier … Continue reading

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Still Perpetuating Prejudice Against Preterms

Our commentary has just been published in Paediatrics and Child Health, the CPS journal together with a response from the Society. (they seem to be open access, but I am not certain). I am disappointed by the response, but not … Continue reading

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More than a diagnosis

The latest from Annie Janvier and team, a publication describing the experiences of families in their internet support group questionnaire study. this particular publication is interested in what happened to families that had a prenatal diagnosis, of trisomy 13 or trisomy … Continue reading

Posted in Advocating for impaired children | Tagged , | 18 Comments

Drug shortages

The recent study by Kluckow and his colleagues points out another serious issue in neonatology: drug shortages. In recent times we have had poor or no supplies of dramatically important drugs, including for example indomethacin, phenobarbitone and more recently caffeine. We also … Continue reading

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Long term outcomes after Very Extremely Preterm Delivery

Another blog post suggested by a reader, this time from Jim Goodmar from San Diego. This study of neurological and developmental outcomes of babies born before 25 weeks is remarkable in a number of ways. (Herber-Jonat S, Streiftau S, Knauss … Continue reading

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Parents advocate for equality for preterm infants

The president of the Canadian Premature Babies Foundation, Katharina Staub, has just had a letter published in the CMAJ. The letter was in response to the article by Dan and Beau Batton, and emphasizes many of the points that they … Continue reading

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Personalized Medicine in the NICU

An article I wrote, with that title, as an open peer commentary in the American Journal of Bioethics has just appeared on-line. The first 50 people to click on the link at the bottom of this post below can get a free full … Continue reading

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